The Importance of Self-Advocacy in the Transition to Adult Diabetes Care

Transitioning from a pediatric diabetic clinic to an adult diabetic clinic can be a daunting experience. For many T1Ds, this signifies a shift not only in healthcare providers, but also in the approach to managing their diabetes. Self-advocacy plays a crucial role during this transition, and it is important for every T1D to ensure their needs are met during this process. Here’s some tips on how to navigate this important phase effectively!

1. Understanding the Shift in Care

Pediatric clinics typically focus on family-centered care, often involving parents and caregivers in management plans. In contrast, adult clinics expect patients to take the lead in their own care. This shift can feel overwhelming, but understanding what is required of you during this change is the first step toward successful self-advocacy.

Some key points that I implemented were the 3 month rule (trying to have an appointment with your team every 3-4 months), making an online folder of all questions & research I thought would be helpful to mention at my appointments and refer to at home (I use Google Drive or my Notes app), and remembering to always ask about new technology – sometimes new tech isn’t advertised as much when you’re in an adult clinic!

2. Know Your Rights

As you transition to an adult clinic, it’s important to recognize your rights as a patient. You have the right to:

• Make informed decisions about your treatment
• Request a healthcare provider and endocrinologist who understands your unique needs
• Access your medical records and ask questions about your care

3. Build a Support Network

Don’t navigate this transition alone! Build a support network that includes:

• Healthcare Providers: Establish a relationship with your new adult diabetes care team. Don’t hesitate to express your concerns and preferences.
• Family and Friends: Engage those close to you in your journey, because their support can be invaluable as you advocate for your needs. You can continue to share CGM numbers, or talk about new developments – whatever the case may be!
• Peer Support Groups: Consider joining diabetes support groups, either in-person or online. Connecting with others who are experiencing similar transitions can provide encouragement and insights. Most universities have diabetes clubs now, and you’re always welcome to attend DHF webinars and T1D Campus Connects on Discord!

4. Practice Effective Communication

When meeting with your new healthcare providers, clear communication is key. Here are some tips:

• Prepare for Appointments: Write down your questions, concerns, and any issues you’ve been experiencing. This will ensure you cover everything important during your visit.
• Be Honest: Share your experiences with diabetes management, including what has worked for you and what hasn’t. Your insights are valuable in crafting a care plan tailored to you. The more they know, the better they can help you treat your diabetes!
• Request Clarification: If something isn’t clear, ask for clarification. It’s essential that you fully understand your treatment plan.

5. Set Goals

As you transition, set realistic and achievable goals for your diabetes management. Discuss these goals with your healthcare team and revisit them regularly. Whether it’s improving blood sugar control, incorporating regular exercise, or exploring new technology options, setting goals can help keep you motivated and engaged.

6. Embrace Independence

This transition marks a new and exciting chapter in your life! Embrace the independence that comes with adult healthcare management. Take charge of scheduling your appointments, managing and picking up your medications, and tracking your health. This autonomy is empowering and fosters a sense of responsibility for your well-being that will stay with you for the rest of your life.

Conclusion

The transition from a pediatric to an adult diabetic clinic can be challenging, but it also presents an opportunity for growth and self-advocacy. By educating yourself, communicating openly, building a support network, and embracing independence, you can navigate this change with confidence. Remember, you are your best advocate, and taking control of your diabetes care is essential for achieving your goals!